In October 2010 I first learned that Gilenya had been approved by the FDA. The first oral treatment for Multiple Sclerosis! So exciting – but I didn’t dare to really believe that I would be switched to it. I knew that insurance would never cover it as long as I was able to use interferon instead, and I had been using Rebif for awhile.
The following February I learned just how high my liver enzymes had gotten (7x the cutoff for normal across the board). My neurologist finally acknowledged that I had to stop taking the injections. It was shocking how freeing this was – the needles had always felt remarkably painful. Knowing that I didn’t have to take my shot when I went home made me want to celebrate. While the circumstances were less than ideal, I took the opportunity to switch from interferon to Gilenya.
I’ve written several additional posts about the process.
The Surprising Slowness Of Getting The Process Started
The First Time Gilenya Contacts Me
Insurance First Declines And Then Approves The Claim
My First-Dose Experience
My First Month On Gilenya
Official And Unofficial Side Effects Of Gilenya
My Neurologist Approves My Continued Use Of Gilenya
Year One Of Gilenya
Latest Test Results On Gilenya
I will continue to add new Gilenya-related content to the list below as I learn more about Gilenya, its side effects, and its results. In the meantime, join us on Facebook and on the forums for discussion!
Diary Of A Gilenya Pioneer: Latest Gilenya Test Results
Diary Of A Gilenya Pioneer: Gilenya Results After One Year On Gilenya
Switching Neurologists – Dumping Doctors And How To Find A New Neurologist
Those Poor Mice: New Developments In Multiple Sclerosis Research
Diary Of A Gilenya Pioneer: Gilenya Followup – YES! I Can Continue Taking Gilenya!
Diary Of A Gilenya Pioneer: Fingers Crossed As I Experience Gilenya Side Effects
Diary Of A Gilenya Pioneer: First Month On Gilenya
Diary Of A Gilenya Pioneer: First Dose Of Gilenya
Diary Of A Gilenya Pioneer: Insurance And Gilenya
A Reader’s Story – Kathy’s Success With Gilenya
Diary Of A Gilenya Pioneer: First Contact With Gilenya!
Diary Of A Gilenya Pioneer: The Gilenya Approval Tests Begin!
Diary Of A Gilenya Pioneer: Gilenya Process Speedbumps
Diary Of A Gilenya Pioneer: Switching To Gilenya!
Gilenya: First Oral Treatment For Multiple Sclerosis
Are Neurologists Pushing Tysabri?
Oral Drugs For Multiple Sclerosis In 2011