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Coping with multiple sclerosis symptoms, attacks, and treatments

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All I Want For Christmas Is You: A Very Multiple Sclerosis Christmas

December 22, 2012 by Sara

Multiple Sclerosis ChristmasAh, the holidays. When everyone is relaxed as sparklingly clean homes are aglow with candlelight reflected in bright smiles at gifts left by santa, toasting glasses, shiny giftwrap ribbons and bows…

Let’s be honest – in many ways the holidays suck.

[Read more…] about All I Want For Christmas Is You: A Very Multiple Sclerosis Christmas

Filed Under: ms support organizations, multiple sclerosis Tagged With: disease, mobility, ms, ms attack, ms hug, multiple sclerosis, muscle spasms, neurological disorder, spasticity

PML And The JC Virus

December 8, 2012 by Sara

PMLTysabri is a dream come true for many individuals with Multiple Sclerosis. Personally, I have opted to take Gilenya (for now), but Tysabri was very tempting when I considered my options after it became apparent that Rebif would not work out for me any longer. However, along with Tysabri’s side effects comes one very sinister danger: PML. One patient on Gilenya has been diagnosed with PML, and it can happen to anyone whether or not they have MS. Knowing that medication (especially newer medications) may bring a risk of PML has frightened us all.

[Read more…] about PML And The JC Virus

Filed Under: diagnostic, doctor, lumbar puncture, mri, multiple sclerosis, neurologist, pml, tysabri Tagged With: disease, exacerbation, gilenya, infection, ms, ms attack, multiple sclerosis, neurological disorder, neurologist, pml, side effects, spinal tap, steroids, tysabri

Living With Multiple Sclerosis – Four Years

December 1, 2012 by Sara

Living With Multiple Sclerosis“They” say that you are considered newly diagnosed for the first 2 1/2 to 3 years after your Multiple Sclerosis diagnosis. It seems like only yesterday that I posted my “Year One” article. It seems like only yesterday that  I was diagnosed! Somehow, enough time has passed that I find myself at a point where I have been living with Multiple Sclerosis for four years.

[Read more…] about Living With Multiple Sclerosis – Four Years

Filed Under: bg-12, cannabis, ccsvi, cognitive dysfunction, depression, diet, doctor, exercise, fingolimod, gilenya, heat intolerance, insurance, lumbar puncture, mri, ms hug, multiple sclerosis, neurologist, rebif, research, stem cell therapy, symptoms, treatment Tagged With: disease, exacerbation, fingolimod, fty720, gilenya, ms, ms attack, ms hug, multiple sclerosis, muscle spasms, neurological disorder, neurologist, spasticity, vitamin d

Pursuing Education With MS

November 17, 2012 by Sara

For almost a week I have returned to the status of “college girl.” No, I have not been downing jello shots or going to keg parties. While I have known for most of my life that a college degree is necessary for most careers, until recently I did not have the opportunity to truly consider completing my degree. After my diagnosis I was certain that it would never happen – I could barely type, stay awake, or have coherent thoughts. Time has passed – I now find myself enrolled in college again. In hindsight I see signs that I already had Multiple Sclerosis in college, but certainly not as advanced as it now is. Pursuing education with MS is intimidating.

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Filed Under: career, multiple sclerosis Tagged With: disease, exacerbation, ms, ms attack, multiple sclerosis, neurological disorder

Multiple Sclerosis With Brain Fog

November 10, 2012 by Sara

Cog Fog probably started sneaking up on you years before your MS diagnosis. Multiple Sclerosis alone is challenging, but Multiple Sclerosis with Brain Fog involves a totally different set of problems.

“Brain Fog” is a term generally used to describe the confusion, disorientation, general grogginess, and other issues resulting from cognitive dysfunction which commonly occurs with MS.

[Read more…] about Multiple Sclerosis With Brain Fog

Filed Under: cognitive dysfunction, multiple sclerosis, symptoms Tagged With: cognitive dysfunction, disease, exacerbation, exercise, gilenya, ms, ms attack, multiple sclerosis, neurological disorder, neurologist, side effects

Introducing Aubagio

September 16, 2012 by Sara

AubagioLast week Sanofi SA’s oral drug for Multiple Sclerosis, Aubagio (also known as Teriflunomide and A77 1726), was approved by the FDA. Somehow this one snuck under my radar and here we are with it scheduled to be prescribed by October 1st!

First, the bad news: studies show that it’s no more effective than Rebif (and maybe less effective). With Gilenya already on the market and BG-12 looming, I doubt that this drug will make a huge impact. It is related to an existing arthritis drug, leflunomide.

The good news is that it does work compared with placebo and is generally safe and well-tolerated. Because it acts differently than interferons, it may also make patients less susceptible to infections. The more choices we have for treatment, the better.

[Read more…] about Introducing Aubagio

Filed Under: aubagio, multiple sclerosis, treatment Tagged With: aubagio, disease, ms, ms attack, multiple sclerosis, neurological disorder, pill

BG-12: The New Normal For MS Treatment?

August 25, 2012 by Sara

BG-12BG-12 (Dimethyl Fumarate) has not yet been approved for use, but trials have been overwhelmingly positive for this low-risk oral drug. Approved for Fast Track (10 months of review) by the FDA on February 28 2012, BG-12 should be available to Relapsing-Remitting MS patients and possibly for individuals with rheumatoid arthritis as a pill taken 2 or 3 times daily before 2013. The European Union, Canada and Switzerland are also currently reviewing this drug.

In addition to rheumatoid arthritis, Dimethyl Fumarate (DMF) is also being studied for its effects on lupus and cancer. DMF is a Fumaric Acid Ester which has been used to treat psoriasis since 1959.

Neurologists around the world are already planning to make this their go-to first line treatment for patients with Multiple Sclerosis even though Biogen Idec (the company behind Avonex and Tysabri) has not yet released a price profile of the drug. Why is BG-12 expected to quickly become the world’s leading MS treatment?

[Read more…] about BG-12: The New Normal For MS Treatment?

Filed Under: bg-12, multiple sclerosis, neurologist, treatment Tagged With: bg-12, disease, ms, ms attack, multiple sclerosis, neurological disorder, neurologist, pill

Stem Cell Treatment For Multiple Sclerosis, Simplified

August 18, 2012 by Sara

Stem Cell Treatment For Multiple SclerosisHow much do you know about stem cell treatment for Multiple Sclerosis?

The idea of a cure for Multiple Sclerosis is threefold:

  1. Prevention Of Disease Development
  2. Reversal Of Damage Done Bye The Disease
  3. Cessation Of Future Disease Progression

While some of the latest research is very promising, no cure has been found. Our conventional treatments work to slow progression of the disease. We can use diet and exercise as well as other alternative therapies to attempt to control the disease. We can stay out of the heat to avoid its effects. Some have even gone through the controversial liberation therapy.

But there are some with Multiple Sclerosis who have unusually aggressive disease progression. Or they don’t respond well to any treatment. When nothing works for you, what risks and costs are you willing to face? I think that stem cell therapy may be the future of all treatment for Multiple Sclerosis.

[Read more…] about Stem Cell Treatment For Multiple Sclerosis, Simplified

Filed Under: multiple sclerosis, stem cell therapy, treatment Tagged With: disease, ms, ms attack, multiple sclerosis, neurological disorder, stem cell therapy

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