• Skip to main content

Diagnosis: Multiple Sclerosis

Coping with multiple sclerosis symptoms, attacks, and treatments

  • Home
  • About
  • Subscribe
  • What Is MS?
  • Gilenya
  • Contact Us

neurological disorder

Career Versus Multiple Sclerosis And Disability

May 20, 2012 by Sara

Multiple Sclerosis DisabilityWork can be stressful and tough without a disease like MS. What’s a person to do when confronting a challenging career and a challenging disease? Plenty of people (and celebrities) have flourished in their careers in spite of MS. What can you do to be one of those people? What are your options if you simply can’t work anymore? What do you need to know about Multiple Sclerosis and disability?

Last week I began a new position at the company where I’ve worked for over a decade. The coming months are certain to be incredibly stressful. The primary challenges I face on a daily basis in a technical office career are cognitive issues, speech issues, walking (even though it’s primarily short distances), and fatigue. I abstain from many medications because they cause too much lethargy for me to power through a work day while taking them. While these are not all of the challenges I face with Multiple Sclerosis, they are the symptoms that affect me most in my job.

Many times when I meet someone, they are surprised that I do still work. I often think about how I could spend the time I’m stressed and tired at work instead resting, doing yoga, swimming, anything to help myself physically and mentally. Then again, who doesn’t dream about being somewhere else when they’re busy on the job? Certainly doctors and hospitals seem to expect everyone to have open schedules ready to spend hours and days in their offices.

[Read more…] about Career Versus Multiple Sclerosis And Disability

Filed Under: career, multiple sclerosis Tagged With: disease, exacerbation, insurance, mobility, ms, ms attack, multiple sclerosis, neurological disorder

Multiple Sclerosis Support Organizations And Events

May 11, 2012 by Sara

Multiple Sclerosis Support OrganizationsWorld MS Day is just around the corner on May 30th 2012.  What have you done to raise awareness for Multiple Sclerosis this year? I’m ashamed – I know people who have participated in Walk MS for years, but I have not. In fact, I never knew how to get involved until this year. And I’m guessing I’m not alone. We have fantastic Multiple Sclerosis support organizations within our reach – do you know who they are or what they do?

In honor of World MS Day, I present to you the following organizations that provide support to those of us with Multiple Sclerosis and each organizations opportunities to take part in the MS community, including fundraising and raising awareness to fight MS. Each of these organizations provides a wealth of information on their websites and also takes part in advocacy for the MS community.

 

[Read more…] about Multiple Sclerosis Support Organizations And Events

Filed Under: ms support organizations, multiple sclerosis, research Tagged With: disease, mobility, ms, multiple sclerosis, neurological disorder

Switching Neurologists – Dumping Doctors And How To Find A New Neurologist

April 21, 2012 by Sara

Find A New NeurologistIt’s that time again- time to find a new neurologist.

I’m not a picky person. Really, I’m not. Normally I will tolerate any kind of abuse from a doctor as long as they give me accurate information about my health and write the necessary prescriptions. However, I’m now on my third neurologist. What happened?

[Read more…] about Switching Neurologists – Dumping Doctors And How To Find A New Neurologist

Filed Under: doctor, gilenya, multiple sclerosis, neurologist, rebif, treatment Tagged With: disease, exacerbation, fingolimod, fty720, gilenya, ms, ms attack, multiple sclerosis, neurological disorder, neurologist, solumedrol, steroids

My Years On Rebif

April 14, 2012 by Sara

Rebif
Interferon Beta 1-A

I’ve written much about Gilenya, but it was not my first treatment. At the time of my diagnosis, Rebif (Interferon Beta 1-A) was really the top drug. Tysabri was the latest thing, but it had only just returned to the market after being yanked so my neurologist avoided prescribing it. In my post-diagnosis panic I felt adrift – unable to make a choice I let current trends determine my direction. If you are trying to choose a drug for MS, take a look at our guide to MS.

With 2 aunts successfully using Beta Seron, one might think that I would do well on interferon. However, my father was taken off Avonex and switched to Copaxone when his liver enzymes were too high to be safe. Rebif was a gamble, but my options were limited. The ease of pre-filled syringes and an auto-injector appealed to me over the possibility of mixing the medicine myself or using a larger needle.

[Read more…] about My Years On Rebif

Filed Under: liver damage, multiple sclerosis, rebif, spasticity, symptoms, treatment Tagged With: injection, interferon, liver, ms, ms attack, multiple sclerosis, muscle spasms, neurological disorder, neurologist, rebif, side effects, spasticity

Marijuana And Multiple Sclerosis

April 8, 2012 by Sara

Marijuana And Multiple Sclerosis“The drug is really quite a remarkably safe one for humans, although it is really quite a dangerous one for mice and they should not use it.” – J.W.D Henderson Director of the Bureau of Human Drugs, Health and Welfare, Canada. If you or a loved on has MS, then by now you have seen their pain and symptoms and have wondered about marijuana and Multiple Sclerosis.

Depending on who you ask, marijuana is either a cure-all for Multiple Sclerosis symptoms or a deadly drug that creates homeless crack addicts. Compassionate Care, Medicinal Cannabis, whatever you’d like to call it, is a hot-button issue that drives many otherwise sane people to extremes when discussed.

Surveys have shown that as many as 50% or as few as 16% of individuals diagnosed with MS already smoke cannabis even with its inherent legal risks. What does Marijuana do exactly that benefits a person with Multiple Sclerosis? And with a prescription THC pill and mouth spray out there, why choose to smoke it instead?

[Read more…] about Marijuana And Multiple Sclerosis

Filed Under: cannabis, multiple sclerosis, spasticity, symptoms, treatment Tagged With: cannabis, ms, ms attack, multiple sclerosis, muscle spasms, neurological disorder, side effects, spasticity

Those Poor Mice: New Developments In Multiple Sclerosis Research

January 1, 2012 by Sara

Multiple Sclerosis Research
Squeak!

Happy New Year! For most of 2011 I have focused solely on my own journey to obtain Gilenya and continue using it. I threw away the needles and felt great about it. And what’s been going on in the meantime? Montel got CCSVI! A new stem cell trial without chemotherapy is almost underway! New medications (*ahem* BG-12) are winding their way through the pipeline! And also in that time, much has been discovered. Multiple Sclerosis Research has recently revealed more about the nature of the Multiple Sclerosis, a disease that needs ever more illumination.

These are the discoveries I find most exciting of all right now.
[Read more…] about Those Poor Mice: New Developments In Multiple Sclerosis Research

Filed Under: bg-12, ccsvi, gilenya, multiple sclerosis, research, treatment Tagged With: ccsvi, clinical trial, disease, ms, ms attack, multiple sclerosis, neurological disorder, primary-progressive ms, research

Diary Of A Gilenya Pioneer: Gilenya Followup – YES! I Can Continue Taking Gilenya!

September 6, 2011 by Sara

Gilenya Followup
On The Pill!

YES! At my Gilenya followup today I learned that blood tests confirm I can continue Gilenya!

Although my current neurologist isn’t a fan of letting his patients view any of their test results I stole my paperwork for a quick read during the 3 hour wait to see him.

What I read initially sent me into a panic.

  • Page 1: My immune system has been decimated. I am one germ away from sudden death.
  • Pages Everything Else: Greek.

[Read more…] about Diary Of A Gilenya Pioneer: Gilenya Followup – YES! I Can Continue Taking Gilenya!

Filed Under: gilenya, liver damage, lymphocyte, macular edema, multiple sclerosis, treatment Tagged With: copaxone, disease, fingolimod, followup, fty720, gilenya, liver, lymphocytes, macular edema, ms, multiple sclerosis, neurological disorder, neurologist, novartis, pill, s1p-receptor modulator, side effects

Diary Of A Gilenya Pioneer: Fingers Crossed As I Experience Gilenya Side Effects

August 28, 2011 by Sara

Gilenya Side Effects

Several months have passed since I began taking Gilenya on May 5. Today I’m focusing on the drug’s possible side effects and how I have personally been affected. The good news is that I seem to be mostly fine so far. In spite of this year’s gloomy start with 2 separate attacks within it’s first few months, I have had no attacks since beginning this treatment. In hindsight I really do feel that Rebif, and probably interferons in general, are just not right for my body. Now that I have begun the drug I have started to focus on Gilenya side effects.

With my Gilenya followup appointment looming in a couple of weeks, I’ll soon find out if Gilenya suits me in the long run. As you can see, I do have my fingers crossed!

[Read more…] about Diary Of A Gilenya Pioneer: Fingers Crossed As I Experience Gilenya Side Effects

Filed Under: fingolimod, gilenya, liver damage, lymphocyte, macular edema, multiple sclerosis, rebif, symptoms, treatment Tagged With: disease, exacerbation, fingolimod, flexibility, fty720, gilenya, high blood pressure, hypertension, infection, insomnia, liver, lymphocytes, macular edema, mobility, ms, ms attack, multiple sclerosis, muscle pain, nerve pain, neurological disorder, neurologist, novartis, pill, s1p-receptor modulator, shortness of breath, side effects, slow heartrate, spasticity, support group, yoga

  • « Go to Previous Page
  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Go to page 4
  • Go to page 5
  • Go to page 6
  • Go to Next Page »

Copyright © 2022 · Infinity Pro on Genesis Framework · WordPress · Log in

 

Loading Comments...